Dictated.....But Not Read! LMAO!! My Crazy journey with Dysautonomia...by the Professional Patient!
Tuesday, June 23, 2009
See, I knew once the doctor got the message that I actually wanted to talk to him, that he'd call......and he did. He says that the ovarian vein is no big deal, and that is shouldn't be to blame for what's going on....So, see I was worrying myself about nothing. Or at least I hope I was....I still have that strange feeling that it has something to do with something...But I need to just give myself a break and trust the doctor. Not matter what, time will tell, and the just of it will comeout. It always does. So I guess....I just gotta sit back and wait for the cysto. July 7th is my new appt date.
Making a mental note here....
No phone call from the doctor yesterday....and then this morning my 'favorite' nurse calls to tell me that the doctor does still want to do the cysto. because of the blood in my urine. OK, not exactly what I had in mind.....I was really hoping to talk to the actual doctor!! I asked the nurse if this meant that he himself wasn't going to call, and she said that he had just left her a note saying this.....So I told her never mind, and that I Guess I would have to find another channel to go through..and then I hung up. I'M REALLY REALLY ANNOYED AT THIS POINT!! So annoyed that I am afraid I can't talk about it! Wouldn't want to say anything that might come back to haunt me later:)
So.....I'll be back when I have something nice to say!
...woke up wet this morning from the night sweats, and my heart monitor connector thingies were totally in the wrong place.....When you sweat they slide, lol! .....and I have some kind of pinched nerve running down my left side into my leg. And we won't even discuss that my heart feels like it's going a million miles a minute~ betcha can't guess why, Bah hahahaha...
OK...this time I'm really outta here.....
Until Next time....
So.....I'll be back when I have something nice to say!
...woke up wet this morning from the night sweats, and my heart monitor connector thingies were totally in the wrong place.....When you sweat they slide, lol! .....and I have some kind of pinched nerve running down my left side into my leg. And we won't even discuss that my heart feels like it's going a million miles a minute~ betcha can't guess why, Bah hahahaha...
OK...this time I'm really outta here.....
Until Next time....
Monday, June 22, 2009
And today I'm rambling on about life.....
I must find the humor in this, if I want to move forward. Don't you love when your body plays tricks on you. Let's take my heart for example. Last month, and the month before that....actually going all the way back to Jan....I've been feeling PVC's. Not like before, but enough to know that I'm having them........So I talked to the heart doc, and have been wearing a 21 day event monitor to catch them. But wouldn't you know that since I've had this stupid machine on....I haven't felt a single one! So annoying, but it's nice to not have them, too. However, I was hoping the doctor could check out what I'm talking about. I know by know I'm not going crazy, that it's just my body doing what it wants to when it wants to. But it still makes it all so confusing!!
Most people run fevers when they have an infection.....I do not. Most women have that friendly little reminder every month to remind them that they're a woman.....Mine does not. And this makes it hard to track my cycle. I'm left to guess. I need to figure out a way to track it, so I can make an appointment to get it looked at again. It's been nice this past week....No night sweats, and no painful breast cyst or chect pains. I'm guessing this week will not be the same.
OK....enough babbling...........I'm off to go wait for the doctor to call......That's if my favorite nurse didn't forget to give him the message! Then again, she could have, and maybe he just has a busy morning! See what happens........Your left to make your own assumptions, and depending on which way your twisted mind works....You can really worry yourself. My thought is don't....Find something constructive to do! Never assume anything, lol.....You'll drive yourself nuts, like I'm doing right now, and well.......It just makes you sicker. LOL......Now do you see why I craft! :)
Most people run fevers when they have an infection.....I do not. Most women have that friendly little reminder every month to remind them that they're a woman.....Mine does not. And this makes it hard to track my cycle. I'm left to guess. I need to figure out a way to track it, so I can make an appointment to get it looked at again. It's been nice this past week....No night sweats, and no painful breast cyst or chect pains. I'm guessing this week will not be the same.
OK....enough babbling...........I'm off to go wait for the doctor to call......That's if my favorite nurse didn't forget to give him the message! Then again, she could have, and maybe he just has a busy morning! See what happens........Your left to make your own assumptions, and depending on which way your twisted mind works....You can really worry yourself. My thought is don't....Find something constructive to do! Never assume anything, lol.....You'll drive yourself nuts, like I'm doing right now, and well.......It just makes you sicker. LOL......Now do you see why I craft! :)
Saturday, June 20, 2009
Quick update!
...so I finally got up the nerve to call the doctor yesterday, and I ended up having to leave a message.....And you'd never guess who called me back~ Yup! My favorite nurse, Bah hahahaha!!! I just can't seem to get away from her. Now, mind you I called at 10ish yesterday morning, and got the call back at 5:09 last night! So, now I have to wait for Monday, and hope that the doctor gets my message!!! I'm really not trying to go up there and throw my ass around to get them to understand, I'M TIRED OF PLAYING THESE FREAKIN GAMES!!! I also cancelled Physical Therapy, and am waiting on the PT to call me back, so I can tell her what's going on. The appt. I canceled was my last appt with her for a while. Figured we take a break, so I could get this other stuff done......That's if I can get that Damn nurse to do her job!!!
My left leg keeps going numb, and I'm a little over it! Have to keep it elevated just to keep the numbness away! And I've got cramps!
And did I mention I'm Grumpy!!! Really really grumpy:)
OK...until next time!
My left leg keeps going numb, and I'm a little over it! Have to keep it elevated just to keep the numbness away! And I've got cramps!
And did I mention I'm Grumpy!!! Really really grumpy:)
OK...until next time!
Tuesday, June 16, 2009
And Today...
I'm still pissed! And well.....that's all I really have to say about that! Still need to call the doctor, Just haven't calmed down enough to do so yet. I did see my 'head' doctor today, and was able to vent a little.....It was nice to have someone to talk to who knew what I was talking about! I am really going to miss having her around! I told her today, that I wasn't really ready to start over with someone else....and that I might wait a while, and see how it goes. I'd like to find someone with a medical background like she does. It's nice to have someone who understands what I'm talking about. She joked about how I was going to have a medical degree before this was all over with. And she agreed with me about this being as plain as the words on the page. This meaning the ovarian vein being the curprit for my leg problems.....among other things. OK......I gotta stop thinking about this or I drive myself mad!
Just Breathe Katie.......this too shall pass!
Just Breathe Katie.......this too shall pass!
I am a Light and I want to Illuminate...
I received the following award this morning from Sans at http://sansdollhousediaries.blogspot.com/
Thank-you Susan for taking the time to stop by and award this blog!

The rules of this award are:
1.-To complete the following phrase: I AM A LIGHT AND WANT TO ILLUMINATE...
2. - Link the blog from where the award came from and leave a message informing that person it has been received.
3.- Link and pass the award to five blogs that, in your opinion, are blogs of light.
So Here goes......
I AM A LIGHT AND I WANT TO ILLUMINATE.....
the way to a better quality of life!
Just because someone is sick, or disabled...
Doesn't mean that they have to stop living!
I want to help people learn how to take the time to stop and smell the Roses.
Even if it's only for a second, Stop and see the beauty around you,
Everyday!!
This is the only life we get.......
So make it Count!
I'd like to pass this blog onto 5 people that have given me a light to follow...
1. Casey from http://caseymini.blogspot.com/
Casey has been writing everyday for over a year now about miniatures. It's something I look forward to each and every day!! She has the best ideas, and is a wonderful teacher! Thank-you Casey for giving us so much eye-candy!
2. Minikat from http://minikatslittlethoughts.blogspot.com/
MiniKat has been so friendly and encouraging with this blog, and I am truly grateful for it!! I know how hard it is to leave a comment on here...People just don't know what to say, I guess...But Minikat always has something kind to say! Thanks for being my friend! Big Hug!!!
3. Mercedes over at http://libertybiberty.blogspot.com/
Mercedes is a Mom like me....and we often share emails about minis and family! LOL...Mercedes and Liberty have become household names over here, lol! Thanks for making time for my family Mercedes!
4. Ana from http://miniaturesforever.blogspot.com/, although these days you can find her here: http://foreverbags.blogspot.com/
Ana was one of the first people I ever talked to in Blogland, and we've become great friends! She makes some beautiful miniature furniture, and is now making personalized bags! Thank-you Ana for all the 'miniature' encouragement you've given me, and especially for my book!!! :)
5. Chris from http://candidcanine.blogspot.com/
Oh where would I be without Chris! She's one of the biggest reasons I got into Minis! And stayed with minis...and she's to blame for me having more then one house, hehehe.....she really got my brain seeing minis!!! LOL! Oh...and she encouraged me to write! So Thank-you Chris!! I know we don't talk much these days....but You know I think of you and your family All the time!!!
It's always so hard to just pick 5! There's so many of you that keep me going, so many that inspire me to keep 'crafting'!! I truly feel blessed to have found the mini world here in Blogland!! Thanks!!! :)
Katie :)
Thank-you Susan for taking the time to stop by and award this blog!

The rules of this award are:
1.-To complete the following phrase: I AM A LIGHT AND WANT TO ILLUMINATE...
2. - Link the blog from where the award came from and leave a message informing that person it has been received.
3.- Link and pass the award to five blogs that, in your opinion, are blogs of light.
So Here goes......
I AM A LIGHT AND I WANT TO ILLUMINATE.....
the way to a better quality of life!
Just because someone is sick, or disabled...
Doesn't mean that they have to stop living!
I want to help people learn how to take the time to stop and smell the Roses.
Even if it's only for a second, Stop and see the beauty around you,
Everyday!!
This is the only life we get.......
So make it Count!
I'd like to pass this blog onto 5 people that have given me a light to follow...
1. Casey from http://caseymini.blogspot.com/
Casey has been writing everyday for over a year now about miniatures. It's something I look forward to each and every day!! She has the best ideas, and is a wonderful teacher! Thank-you Casey for giving us so much eye-candy!
2. Minikat from http://minikatslittlethoughts.blogspot.com/
MiniKat has been so friendly and encouraging with this blog, and I am truly grateful for it!! I know how hard it is to leave a comment on here...People just don't know what to say, I guess...But Minikat always has something kind to say! Thanks for being my friend! Big Hug!!!
3. Mercedes over at http://libertybiberty.blogspot.com/
Mercedes is a Mom like me....and we often share emails about minis and family! LOL...Mercedes and Liberty have become household names over here, lol! Thanks for making time for my family Mercedes!
4. Ana from http://miniaturesforever.blogspot.com/, although these days you can find her here: http://foreverbags.blogspot.com/
Ana was one of the first people I ever talked to in Blogland, and we've become great friends! She makes some beautiful miniature furniture, and is now making personalized bags! Thank-you Ana for all the 'miniature' encouragement you've given me, and especially for my book!!! :)
5. Chris from http://candidcanine.blogspot.com/
Oh where would I be without Chris! She's one of the biggest reasons I got into Minis! And stayed with minis...and she's to blame for me having more then one house, hehehe.....she really got my brain seeing minis!!! LOL! Oh...and she encouraged me to write! So Thank-you Chris!! I know we don't talk much these days....but You know I think of you and your family All the time!!!
It's always so hard to just pick 5! There's so many of you that keep me going, so many that inspire me to keep 'crafting'!! I truly feel blessed to have found the mini world here in Blogland!! Thanks!!! :)
Katie :)
Monday, June 15, 2009
Lord, Grant me the ability to keep my Mouth shut!!
So....I'm back.....and I'm pissed! I went to my cystoscopy today, to only find out that the freaking nurse never scheduled the appointment! She called and left me a message as to when it was...and she sent me a letter in the mail.....but never wrote it down on their end! Ask me if I was breathing fire! And Yes this is the same nurse I was having problems with a few months ago! I am so annoyed!! But I kept my cool, Yes I did! My son would of been proud! LOL!! So she had to reschedule it, and when she gave me a time and date...I said are You sure?? Am I really going to have an appointment for that day?? I also asked if I could have a copy of my CT that was done 2 months ago......and when she asked me where I had it done, I politely reminded her it was at the ER...remember that experience?? If I didn't know better, I'd say this nurse has it out for me?? I don't need this stress.....Really I don't. I was so nervous about today....and now I have to wait 3 more weeks! What the F*C*???
And my Ct report just makes me more nervous! It says I have a "Prominent left ovarian vein and multiple prominent pelvic vessels." It also says "this finding has been associated in the past with pelvic congestion syndrome." So......what does that mean. LOL...Ok, here's me playing doctor....we'll have to wait and see how close I am to the truth. After doing some research online, I have learned that I have 'varicose veins' in my abdomen that are causing blood flow problems. Now, call me retarded, but wouldn't this explain why I lose circulation in my legs when I sit or stand??? And going back through my records, I see that this has been something that has been brought up before, but was never discussed with me. I don't even know how I missed it, I normally go through my records with a fine toothed comb, because I know that drs are busy, and that things are missed. But, for real...is this not like a duh moment or what??? Maybe it's just me, and I'm feeling loud mouthed and angry, but Hello. I can't do this all by myself!! I feel like I keep running into the same brick wall over and over again!! Somebody please stop me!!
So...I probably need to call the doctor tomorrow and ask what this means. I have read several articles about this online this afternoon, and none of it sounds like a walk in the park. Hopefully I'm reading way beyond what I should, and there's a quick fix, but I just have that feeling that it's just not that easy! Nothing ever is around here! Damn it!
LOL....I'm off to go find something to kick!!! &%^$^&%&^ NURSE!!!!
And my Ct report just makes me more nervous! It says I have a "Prominent left ovarian vein and multiple prominent pelvic vessels." It also says "this finding has been associated in the past with pelvic congestion syndrome." So......what does that mean. LOL...Ok, here's me playing doctor....we'll have to wait and see how close I am to the truth. After doing some research online, I have learned that I have 'varicose veins' in my abdomen that are causing blood flow problems. Now, call me retarded, but wouldn't this explain why I lose circulation in my legs when I sit or stand??? And going back through my records, I see that this has been something that has been brought up before, but was never discussed with me. I don't even know how I missed it, I normally go through my records with a fine toothed comb, because I know that drs are busy, and that things are missed. But, for real...is this not like a duh moment or what??? Maybe it's just me, and I'm feeling loud mouthed and angry, but Hello. I can't do this all by myself!! I feel like I keep running into the same brick wall over and over again!! Somebody please stop me!!
So...I probably need to call the doctor tomorrow and ask what this means. I have read several articles about this online this afternoon, and none of it sounds like a walk in the park. Hopefully I'm reading way beyond what I should, and there's a quick fix, but I just have that feeling that it's just not that easy! Nothing ever is around here! Damn it!
LOL....I'm off to go find something to kick!!! &%^$^&%&^ NURSE!!!!
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