I'm still here....I just have a hard time writing everyday about how I feel like crap. I want to be able to share the highlights of this adventure......and keep you interested enough to come back for more. So with that said.....
I started Physical Therapy again today. Actually, I was there last Thursday to get re-evaluated. But today........we actually 'worked'. So let me tell you a little bit about the kind of PT that I go to. It's for my bladder: For the Interstitial Cystitis (IC) , and I'll just say they get very personal with me. I have muscle spasms most of the time, and the PT finds them and then drives her fingers into it to get the muscle to relax. Some days it doesn't bother me....and then some days I walk out of the office looking like I just got off a horse. LOL.......I tell ya, the things I go through to have a normal life, is anything but normal. There's even a 'probe' that goes inside of my Vagina to record the muscle spasms......When I started this years ago, I was at an 8/9.........And last week I registered at a 5/6.....I have learned over time how to get it down to under a one...but I have to lie perfectly still and I can't talk. LOL, talking makes my numbers jump through the roof every time.
The PTs also work on my abdomen.....and it does help. I notice that when I'm in PT, my bowels are more regular. *Sometimes they (my bowels) forget to work, and I have to 'jump' start them. If your ever constipated......rub you tummy in small clock wise circles, and I promise, it helps.......
So does a bowl of Raisin Bran!
They've also done a lot of work on my back. I slid into home base on a concrete court when I was 7ish and it somehow curved my tailbone up. Yes, I actually have a nub back there. Now that I'm starting to gain back some of that weight I lost, it's not so bad.......But, dang! When I was really skinny, I used to get bed sores on it....And I can't have any kind of surgery with being on a doughnut on the OR table (Unless my feet are in stirrups...somehow doing this makes my tailbone flatten out better). That was something I learned the hard way...I think it's when they move me from the OR table to the bed, they put me down butt first. And it messes with those nerves. It was so bad one time, I had to go get Cortisone shots into my tailbone. That hurt like a son of a bitch!!! But after a couple of days, it was All better! I'll never go thought that again.....I hope. Now I come prepared, with my trusty blue doughnut that always seems to deflate before surgery is over. And actually, when I had my breast surgery, they lined the OR table with that egg crate stuff, and that worked!!!! LOL...I really shouldn't know this kinda stuff, but I do....Maybe one day I can write a book on becoming a better patient. The things you need to know.....lol...... Oh and it would definitely have a chapter on tests and what they really feel like. I swear sometimes the science of medicine is so Barbaric!!! Just the other day....I was talking to someone about how they are now trying Botox injections into the pelvic floor to control muscle spasms......Good Lord.....Not me! Now way, no how!! I am curious to see if it helps this patient though......Medicine can be an interesting topic, huh......
Oh, and at the Heart Center, they have this thing I think they call the 'slip and slide'.....It's this big Yellow sheet of plastic that they slide under you, so they can slide you from bed to bed. I think because of the catheters, they can't bend your legs. LOL....that's the worse part of the ablations....Taking these freaking catheters out! Now that's painful!
So, back to PT.......Today, it got me.....lol......When I left, I was very sore.....my hips/hip flexor area were bugging me the most! Have that 'horse' syndrome again, haha! Took a Valium and things have finally started to quiet back down. Stupid hips! You're not suppose to ache this bad at 30!
I finally got over the migraine spell from last week, and now my body just wants to sleep. Still dizzy, coming off the off ramp tonight had me feeling drunk! Breast cyst? isn't swollen at the moment, but I've been having horrible chest pains, and it radiates down my left arm, almost numbing it. Not sure where that's coming from, but I figure I haven't falling over dead yet, So I'm good. LOL. Bladder is nice and tingly.....and my left-back side is swore~ Muscle pulled or kidney....take your pick?! Did have a mild headache today, but a 2 hour nap took the edge off. Doing good about remember to take my morning meds! Can't tell if they're working yet or not. PVC's not too bad.......But my heart speed is up. I think it was yesterday?- But my heart felt like it was trying to kick start itself~ felt like I had Thumper in my chest....not to sure what that was, but OK.
Hey, at this point, I'm just along for the ride.....haha.
Have a CT in the morning~ My blood count in my urine was kinda high the last time I saw the urologist...So we're just doing a routine check up. I haven't had a normal CT in years....lol.....Nothing ever serious, but a normal CT would be nice.
OK.....off to go find something to eat......Gotta make sure it's something light~ My bowels move so slow that what ever I eat to night will be in the pictures tomorrow, haha.
Until Next time......
Showing posts with label IC. Show all posts
Showing posts with label IC. Show all posts
Tuesday, May 5, 2009
Friday, April 17, 2009
Today's Verdict...
I saw my Urologist today.....for a 3 month check up.
You know, it's always fun at this docs office. Some days I'm not a very nice person, and some days I can tolerate anything. You see, he's part of a team of doctors that are affiliated with Eastern Virginia Medical School. Yes, I see the best of the best now......no more wasting my time auguring with doctors about something I know 'is what it is'. But the thing about being seen at a 'Medical School', is you also get to entertain medical students. Now, way back when I had my kids, I lost all hopes of ever being a modest person....lol, Come on, You know you get to a point where you don't care who looks....but now, on my evil days...I don't want 3 eager (males in their early 20's) medical students peering into my vagina to 'have a look'. By now my doctor knows that I do this.....so lately I have noticed that he only sends in one medical student....and they have all been women....lol...I know the day he sent those 3 poor students into my room, they had no idea what kind of a day they were about to have...lol.....
But, like I said, with time, me and this doctor have come to understand each other....... And I think he's amazing. He actually listens, and will sit and talk with me if I need it. And when I tell him I think something weird is going on, he doesn't insist that I speak with my shrink first......lol...... I've done several rounds of physical therapy, just finished up 13 weeks of it not to long ago. I know, I should be in continually PT, but sometimes, even I need a break. It has become my 'job' to take care of myself. I'm learning as I go.....some good, some bad.....but I'm learning.
So, my visit went well. My blood level in my urine read "LARGE" ~ I know this because the nurse wrote it in such big letters I could see it from across the room....don't worry, this is normal for me.....I tell the doc all the time, that the day he tells me there's no blood in my urine, is the day I'll get scared! I have Interstitial Cystitis (called IC for short) and have had it for almost 10 years now. Before I was diagnosed, the docs thought I kept getting UTIs, and told me to drink lots of Cranberry juice........And I drank a lot of Cranberry juice, so much I started peeing straight blood.....that's when they sent me to a specialist and I learned about IC. Did you know that they call Cranberry Juice the Acid Bomb in our world.........It has more citric acid than anything else.... Over the years I have learned to try and stay away from citric acid, but it so hard, as it's in almost everything. One day I'll drop of the 'can eat' and shouldn't eat' list....and they wonder why I have 'eating' issues.....they took all the good stuff away from me, haha! OK......so my doc is scheduling me for another Cystoscopy and a CT of my abdomen. Just routine follow-up....haven't had either one done in a couple of years, so we just want to make sure everything is still where it belongs. I have one ovary left, that normally has a cyst sitting on it, and a hole in my kidney?? The whole been there forever, too.....docs say it's just a birth defect...nothing to worry about, and so far in life, I haven't had any problems with it. Both are pretty simple tests......a walk in the park for an ole' pro like me.......Hahahaha!!
.....My doctor did say to me today, that I look better than I have looked in a long time!! I'm starting to finally gain weight again.....no more hollow cheeks here!
Other symptoms today:
~Left breast cyst is hurting.......I'd like to cut it out myself! Good thing I can't stand the sight of blood, huh!
~And my heart's been skipping beats again today.........Again, normal for me.............I was just hoping we were past that part of it all. The EP doc told me that one day they could come back, but I was hoping to get a little more than a year an a half. They're still not as bad as they have been.....But they do drive me crazy!!
~Oh, and I have a cold sore that started about 2 days ago.......Either it was stress, or getting dehydrated....or the combo of the 2. Damn Lip.....hurts like a son of a gun!
You know, it's always fun at this docs office. Some days I'm not a very nice person, and some days I can tolerate anything. You see, he's part of a team of doctors that are affiliated with Eastern Virginia Medical School. Yes, I see the best of the best now......no more wasting my time auguring with doctors about something I know 'is what it is'. But the thing about being seen at a 'Medical School', is you also get to entertain medical students. Now, way back when I had my kids, I lost all hopes of ever being a modest person....lol, Come on, You know you get to a point where you don't care who looks....but now, on my evil days...I don't want 3 eager (males in their early 20's) medical students peering into my vagina to 'have a look'. By now my doctor knows that I do this.....so lately I have noticed that he only sends in one medical student....and they have all been women....lol...I know the day he sent those 3 poor students into my room, they had no idea what kind of a day they were about to have...lol.....
But, like I said, with time, me and this doctor have come to understand each other....... And I think he's amazing. He actually listens, and will sit and talk with me if I need it. And when I tell him I think something weird is going on, he doesn't insist that I speak with my shrink first......lol...... I've done several rounds of physical therapy, just finished up 13 weeks of it not to long ago. I know, I should be in continually PT, but sometimes, even I need a break. It has become my 'job' to take care of myself. I'm learning as I go.....some good, some bad.....but I'm learning.
So, my visit went well. My blood level in my urine read "LARGE" ~ I know this because the nurse wrote it in such big letters I could see it from across the room....don't worry, this is normal for me.....I tell the doc all the time, that the day he tells me there's no blood in my urine, is the day I'll get scared! I have Interstitial Cystitis (called IC for short) and have had it for almost 10 years now. Before I was diagnosed, the docs thought I kept getting UTIs, and told me to drink lots of Cranberry juice........And I drank a lot of Cranberry juice, so much I started peeing straight blood.....that's when they sent me to a specialist and I learned about IC. Did you know that they call Cranberry Juice the Acid Bomb in our world.........It has more citric acid than anything else.... Over the years I have learned to try and stay away from citric acid, but it so hard, as it's in almost everything. One day I'll drop of the 'can eat' and shouldn't eat' list....and they wonder why I have 'eating' issues.....they took all the good stuff away from me, haha! OK......so my doc is scheduling me for another Cystoscopy and a CT of my abdomen. Just routine follow-up....haven't had either one done in a couple of years, so we just want to make sure everything is still where it belongs. I have one ovary left, that normally has a cyst sitting on it, and a hole in my kidney?? The whole been there forever, too.....docs say it's just a birth defect...nothing to worry about, and so far in life, I haven't had any problems with it. Both are pretty simple tests......a walk in the park for an ole' pro like me.......Hahahaha!!
.....My doctor did say to me today, that I look better than I have looked in a long time!! I'm starting to finally gain weight again.....no more hollow cheeks here!
Other symptoms today:
~Left breast cyst is hurting.......I'd like to cut it out myself! Good thing I can't stand the sight of blood, huh!
~And my heart's been skipping beats again today.........Again, normal for me.............I was just hoping we were past that part of it all. The EP doc told me that one day they could come back, but I was hoping to get a little more than a year an a half. They're still not as bad as they have been.....But they do drive me crazy!!
~Oh, and I have a cold sore that started about 2 days ago.......Either it was stress, or getting dehydrated....or the combo of the 2. Damn Lip.....hurts like a son of a gun!
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